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Strategic partner updates October 2015

06 October 2015

Health and Social Care update from our work as Strategic Partner (SP) to the Department of Health, NHS England and Public Health England

Disability Rights UK heads up a user-led consortium as one of 22 strategic partners in the voluntary sector. Our name is ‘Win-Win Alliance – disabled people leading change’ (WWA). This programme is commissioned by our system partners, the Department of Health, NHS England and Public Health England. As strategic partner we are well placed to raise particular challenges facing our members of disabled people’s user-led organisations. We also ensure that information and opportunities to engage with system partners reach our members through this and other updates, forums, meetings and discussions, and we regularly inform about funding opportunities (which you may pursue with or without Disability Rights UK). This month we particularly invite our members’ contributions to a new research & development project on ‘user-driven commissioning. For any comments and/or ideas about how to strengthen ‘disabled people leading change’, please get in touch with Bernd.Sass@disabilityrightsuk.org 

With some support of the Strategic Partnership Programme and an ESRC grant we want to focus on ‘what makes change happen?’ The special thing about this initiative is that it has both development and research elements – so we can help make things better and then study the impact that this is having. If we co-produce projects, can we disabled people have a positive impact on professionals and on what they are doing? How does this happen?

Maybe your DPULO is already involved with the local Clinical Commissioning Group or Adult Social Care department – say on co-producing experience and outcome measures that would be written into provider contracts to determine (to an extent) the payment of these providers. Or peer support is really about to take off from a well resourced and supported basis in your local area?

If you would like to work with us on any such projects in the future or simply showcase what you have done, please get in touch with Bernd Sass at Disability Rights UK bernd.sass@disabilityrightsuk.org . Or call him directly on 07906 521536. www.Disability RightsUK.org has initiated user-driven commissioning, a tried and tested approach to translate lived experience, risk and protective factors in care pathways into metrics of experience and outcome measures (alongside further co-produced stages of commissioning and procurement) with a view to create a more directly accountable, user-owned and effective landscape of services and support.

One of our members recently replied: "You have given me lots of food for thought. I will do some initial thinking and explore some ideas with our ILS Coordinator and with my Integrated Personal Commissioning colleagues." See also our quarterly highlights! 

With some support of the Strategic Partnership Programme and an ESRC grant we want to focus on ‘what makes change happen?’ The special thing about this initiative is that it has both development and research elements – so we can help make things better and then study the impact that this is having. If we co-produce projects, can we disabled people have a positive impact on professionals and on what they are doing? How does this happen?

Maybe your DPULO is already involved with the local Clinical Commissioning Group or Adult Social Care department – say on co-producing experience and outcome measures that would be written into provider contracts to determine (to an extent) the payment of these providers. Or peer support is really about to take off from a well resourced and supported basis in your local area?

If you would like to work with us on any such projects in the future or simply showcase what you have done, please get in touch with Bernd Sass at Disability Rights UK bernd.sass@disabilityrightsuk.org . Or call him directly on 07906 521536. www.Disability RightsUK.org has initiated user-driven commissioning, a tried and tested approach to translate lived experience, risk and protective factors in care pathways into metrics of experience and outcome measures (alongside further co-produced stages of commissioning and procurement) with a view to create a more directly accountable, user-owned and effective landscape of services and support.

One of our members recently replied: "You have given me lots of food for thought. I will do some initial thinking and explore some ideas with our ILS Coordinator and with my Integrated Personal Commissioning colleagues." See also our quarterly highlights! 

Tameside, 23 October – looking for disabled people to feed back on health and social care and 'Quality in a Place' at a focus group

Disability Rights UK would be grateful if you could help with finding disabled people or groups or leads to networks in Tameside. This is a great opportunity to discuss an initiative by the Care Quality Commission (CQC) called 'quality in a place'. 

This CQC initiative is looking at the experience of the whole person and 'quality in a place'. The CQC wants to understand better how this could work and what the different roles could be. 

We are keen to talk to:

1. disabled people, carers and advocates (paid and unpaid) who have experience of local health and care services work across Tameside, the voluntary sector, and other support organisations and staff.  

2. disabled people who can talk about the quality of health and social care services and support in Tameside. We also want to ensure that we speak to the full diversity of disabled people, including people who are involved with Black and Minority Ethnicity, Lesbian Gay Bisexual and Trans, and faith groups, who also have members with a disability.  

Service users will receive a voucher as a thank you for their time.

Place and Time

23 October, 10.30 - 15.30. Location to follow 

Please let Bernd ( Bernd.Sass@disabilityrightsukorg  mob 07906 521536 ) know if you want to book a place and feel free to share this info in Tameside for others to get in touch with us, too.

Disability Rights UK pushing user-driven commissioning in several sites

Based on our latest project with Shaping Our Lives and Bristol South Central CCG funded by the Department of Health, NHS England and Public Health England, we are now establishing new project sites for user-driven commissioning – we are very happy that we will be able to use an ESRC grant (through partnering with the University of Bristol) to study the impact of disabled people on NHS and social care systems and processes.

Typically, the development stage for user-driven commissioning starts with bringing together a group of local disabled people/patients with lived experience of a certain care area or also across care areas, eg Personal Health Budget Holders. With a range of games and team-building exercises, the lived experience group will be facilitated to open up to each other and explore and share life stories. People will then move on to map out risk and protective factors in feeling good about themselves. They will then go on to explore the range of existing services and support – also taking into account and building on what their peers may have fed back in the past. After that people will set out a vision of what a landscape of ideal services and support would look like. Depending on the purpose agreed with the statutory body beforehand, the group will then take a more specific focus, eg on experience and outcome measures (to be translated into metrics) or co-procurement as a distinct stage in the commissioning cycle.

The project sites will come to an end once a tangible impact has been achieved. This can take the form of a refreshed service specification with clear indicators written into provider contracts and informing payment profiles. The impact can also be a whole new landscape of services and support after a fully-fledged procurement exercise, with the lived experience group exercising a defined stake of say 20% in the decision-making on the winning bidder(s).

Further specific news

Realising the Value programme

The Realising the Value programme, funded by NHS England, seeks to enable people to take an active role in their health and care. The aim is to develop evidence-based approaches and tools to support the implementation of person centred care. Programme partners are looking for experienced local partner sites, from within the voluntary, community and social enterprise sector or that work closely with this sector, that have an appetite to use their existing experience to help others learn what works in practice.

See more at: http://www.nesta.org.uk/call-applications-local-partner-sites-realising-value

The deadline for responses is 13 October 2015. 

Realising the Value: 3 opportunities to get involved

The Realising the Value programme is studying the value of person- and community-centred interventions, with a view to creating models and tools for commissioners and others to use. There are three different ways members and networks can get involved.

  1. Feedback on Discussion Paper

The programme has published a discussion paper, ‘How should we think about value in health and care?’.   

This paper is the first step towards building a new articulation of value across health and care, which better reflects what matters most to people and communities, and the types of value they themselves contribute.  

The programme team are now looking for comments on the paper from a wide range of stakeholders.

Click here to download the paper and see questions that you can use as a basis for your response.  Please email your thoughts and feedback to info@realisingthevalue.org.uk by the end of October. 

Do also keep following the site, where there will be a series of blog responses from across health and care.

  1. Call for applications to be a local partner site

The value of person- and community-centred interventions will be studied from the perspectives of five types of interventions:  

  • Self-management education
  • Peer support
  • Health coaching
  • Group activities that promote health and wellbeing (community-based activities such as cooking classes, walking groups, etc)
  • Asset based community development (ABCD) 

The programme is now looking for experienced local partner sites, from within the voluntary, community and social enterprise sector or that work closely with this sector, that want to use their existing experience to help others learn what works in practice in relation to each of these topics. 

Click here to find out more about how to apply and the support available to partner sites.  

  1. Share your existing tools on the 5 areas

The programme is also keen to hear from organisations who have already produced tools and models to try to help commissioners and providers implement the five interventions listed above.

If you have existing resources that you think the programme could learn from and share with others, please do upload them online here by Tuesday 6 October.

Gearing up for one of the most fundamental changes in NHS history

Sir Bruce Keogh has outlined an emerging strategy for Personalised Medicine in the NHS. NHS England’s National Medical Director said it would entail a move away from a ‘one size fits all’ approach to the treatment and care of patients with a particular condition, to using diagnostics, genomics, data analytics and other emergent technologies to identify the underlying cause of disease. He told NHS England’s Board this was the way to ensure the right patient gets the right treatment at the right time, leading to improved outcomes.

To read more, go to: http://www.england.nhs.uk/2015/09/24/personalised-medicine/ 

We will keep you posted about implications of this new approach. 

Consultation on the role of the National Data Guardian for health and social care - consultation closes 17 December 2015

This consultation seeks views on the responsibilities of the statutory National Data Guardian for health and social care. The responses will form a major part of the development for more detailed proposals to establish the National Data Guardian for health and social care on a statutory footing.

The National Data Guardian for health and social care will help to ensure that personal confidential data is held and used to support better outcomes from health and care services, at the same time providing confidence that there are thorough safeguards in place to protect personal confidential data.

To read more and respond to the consultation, go to: https://www.gov.uk/government/consultations/the-role-of-the-national-data-guardian-for-health-and-social-care

Dame Fiona Caldicott has set out her priorities as National Data Guardian and invites you to comment on what her role should cover: https://www.gov.uk/government/speeches/national-data-building-trust-across-health-and-social-care 

Enabling closer working between the emergency services - consultation closes 23 October 2015

The government believes that greater joint working can strengthen the emergency services and deliver significant savings and benefit for the public.

This consultation seeks views on proposals to increase joint working between emergency services, in order to improve effectiveness and deliver savings for the public.

To read more and respond, go to: https://www.gov.uk/government/consultations/enabling-closer-working-between-the-emergency-services

From 2020, people with suspected cancer will be diagnosed faster

The government has pledged that from 2020, people with suspected cancer will be diagnosed within 28 days of being referred by a GP.

According to the Independent Cancer Taskforce, set up as part of the NHS’s Five Year Forward View to examine how to improve cancer care and survival rates, the target to diagnosis all suspected cancer cases within 28 days could help save up to 11,000 lives a year.

To read more, go to: https://www.gov.uk/government/news/from-2020-people-with-suspected-cancer-will-be-diagnosed-faster

NICE seek views on social care
The National Institute for Health and Care Excellence (NICE) are responsible for developing quality standards and guidelines for social care in England. NICE and the Department of Health are currently consulting with the sector to ensure their final list of topics meets the needs of the sector. 

A consultation has just closed but as Disability Rights UK will attend a NICE event on 29 October you can still pass on any direct comments to bernd.sass@disabilityrightsuk.org . Our comments at this particular event will feed into a new guideline on service user and carer experience’. 

Indices of Deprivation to help you demonstrate local need

The English Indices of Deprivation 2015 have just been published. This provides information that you can use to understand and demonstrate local need. It can help you in funding bids and also can help you when supporting local groups.

There is a guidance note that explains how the index of multiple deprivation can be used, and expands on the headline points in the infographic. It will also help you to navigate the various data files and documents available.

Supporting documents include a Statistical Release of the main findings, a guidance note, infographic and frequently asked questions, with more detailed research and technical reports.